Sunday, September 25, 2011

How to Find a 'Best' Hospital for Diabetes

This is a really great article that I found online that I feel should be read by others.  It was written by Avery Comarow for the U.S. Health website.  The link is a the bottom of the article. 

Most medical problems can be cured or fixed, but diabetes isn't one of them. It is a lifelong condition, kept in check by driving down blood glucose to a healthy level and keeping it tightly controlled with a combination of medications that lower blood sugar, proper diet, regular exercise, and other lifestyle changes. A hospital stay due to diabetes-related complications, like nerve pain or circulatory problems, should not happen—it means the disease wasn't properly managed. Moreover, a hospital stay for any reason exposes diabetic patients to special dangers. A patient whose blood sugar is too high has an increased risk of infection and will be slower to heal if surgery is needed.
Maintaining good blood sugar level is particularly challenging in a hospital setting, however. No matter how diligent the care, it won't match the regimen a patient might have meticulously crafted. If a patient is on insulin, the hospital may use a different form—rapid-acting rather than the patient's long-acting version—or administer the wrong dose. (Insulin errors are among the most frequent serious medical mistakes in hospitals.) Meals are likely to be served at different times than a patient is accustomed to, and are not portion-controlled. Blood thinners, blood pressure drugs, pain relievers, and other medications can affect glucose levels. So can the emotional stress of being in the hospital. Moreover, diabetic patients often arrive with other chronic conditions that complicate treatment, such as heart disease and respiratory problems. The 50 diabetes centers ranked in the latest edition of Best Hospitals, released last month by U.S. News & World Report,bring together teams of specialists to deal with these multiple difficulties. The top 10 are shown below, followed by information about what makes a good diabetes center, how to determine whether one is needed, and advice on how to get admitted.
The Best Hospitals in Diabetes & Endocrinology
Rank
  1. Mayo Clinic, Rochester, Minn.
  2. Massachusetts General Hospital, Boston
  3. Johns Hopkins Hospital, Baltimore
  4. University of California, San Francisco Medical Center
  5. Ronald Reagan UCLA Medical Center, Los Angeles
  6. Cleveland Clinic
  7. New York-Presbyterian University Hospital of Columbia and Cornell
  8. Yale-New Haven Hospital, New Haven, Conn.
  9. Barnes-Jewish Hospital/Washington University, St. Louis
  10. Brigham and Women's Hospital, Boston

What makes these hospitals the best for diabetes? 
Their caregivers are always aware that treating a diabetic patient is complex. They closely monitor blood sugar levels, alert the staff that a patient is diabetic through the use of colorful wrist bands or other means, adjust the timing and content of meals, and take additional special precautions to protect the patient. When a diabetic is admitted because her congestive heart failure is worsening, for example, doctors will check her legs for poor circulation (peripheral artery disease), her stomach for ulcers, her feet for numbness caused by nerve damage, and will be on the lookout for other conditions that may not have revealed themselves but might need attention. Before she is discharged, she will likely be seen not only by diabetologists or endocrinologists but by a team made up of a nutritionist or dietitian, an ophthalmologist, a nurse educator, and other specialists to examine her and help her script a practical plan to deal with her diabetes when she is discharged.

What data were used to reveal these qualities? 
Centers at the top of the Best Hospitals rankings had very high reputations among diabetes specialists who responded to U.S. News surveys over the last three years asking where they would send their most difficult diabetes patients if money and geography were not considerations. Almost two-thirds of the physicians, for example, nominated the Mayo Clinic and almost half named Massachusetts General Hospital. Beyond the top 10 hospitals or so, however, reputation wasn't that important. Ten of the 50 ranked hospitals didn't get a single nomination. What put them in the rankings were low death rates (generally at least one-third below the expected rate for patients with serious diabetic conditions and other endocrine disorders after taking into account the patients' condition when they were admitted and other risk factors), strong nursing standards (more than half are "Nurse Magnet" hospitals, formally recognized by the American Nurses Credentialing Center for their high-quality nursing care), and a full roster of patient services that U.S. News has defined as important (such as wound-management services, which are of special significance to diabetics because of skin problems and nerve damage).

How will I know if I need one of these hospitals? 
Such a moment might involve a decision that affects your quality of life. About 70,000 diabetics a year, for example, have a foot or leg amputated because of impaired circulation, infection, or other causes. To put it another way, doctors tell nearly 200 diabetic patients on a typical day that amputation is necessary. But the best hospitals for diabetics are less likely to deliver that message. They are more experienced in restoring circulation or at finding other ways to preserve the limb. Top diabetes centers are also better than others at identifying and treating complications before drastic measures like amputation are necessary. Someone whose diabetes is unusually hard to control or whose heart, circulatory, or other diabetes-related complications are progressing might want a consult at a ranked facility within a reasonable distance from home. That shouldn't be overly difficult in most parts of the country. The 50 U.S. News-ranked diabetes hospitals are in 35 different cities across 29 states and the District of Columbia.
Can I get into a ranked hospital? 
Almost always. Patients can often do it themselves by calling a patient referral number or sending an E-mail; information on both will be on the hospital's website. You should first check to see if your health insurance carrier will cover the cost. If there is any doubt, your physician should make the referral. He can deal with push back from a health insurer better than you can—he's used to it.

Friday, March 4, 2011

A dose of Reality...

I was diagnosed March 28, 1992. It has almost been 19 years. I have been on 4 different types of insulin, 4 insulin pumps, countless glucose meters and I have pricked my finger over 27,740 times. I don't know if there will be a cure in my lifetime. I pray. I also pray that I don't pass diabetes onto my children.

However, I believe we should be prepared. My diabetic genes could be passed on to my future children, especially, if I have children with another diabetic.

If I were to have a child before I turn 25, then the odds of that infant getting diabetes is 25 to 1 but if I give birth after the age of 25, the infant's odds increase to 100 to 1. A male with type 1 diabetes is about 1 in 7 chance of passing the disease. All of these statistics are based on if both parents have type 1 diabetes.

If only one parent has the diabetes, then there is only a 10 percent chance that it will be passed on. However, it can skip a generation, like my family. My mom, and aunt did not get diabetes, but I was the lucky one.

As much of a burden diabetes can be sometimes, I feel truly blessed because I would not have had the life experiences or met some of the most wonderful people as I have.   

Me and Necole who is also type 1 diabetic

Friday, February 25, 2011

Preggers? Get Tested

Did you know that gestational diabetes affects around 4 percent of all pregnant women which is around 135,000 women in the U.S. each year.

What is gestational diabetes? According to an online medical dictionary, “gestational diabetes is a condition that occurs during pregnancy. Like other forms of diabetes, gestational diabetes involves a defect in the way the body processes and uses sugars (glucose) in the diet (http://medical-dictionary.thefreedictionary.com/Gestational+diabetes).

These women must then treat their symptoms of diabetes much like the rest of us with blood sugar monitoring, diet, and medications.

http://personalpregnancyblog.com/wp-content/uploads/2009/10/pregnant12.jpg

My understanding of how women are affected by gestational diabetes is that the placenta where the baby grows creates a hormone that is to help give nutrients to the baby. This hormone can also block the natural insulin created by the mother. This is also called a insulin resistance.

With high glucose levels, or hyperglycemia, the sugar is not able to leave the blood stream and be passed through the body. During this time period, your pancreas is working twice as hard to create insulin to compensate for the high blood sugars.

Even though, the insulin does not pass through the placenta but the glucose does. This can lead to macrosomia, or a “fat” baby because your baby is having to create more insulin for the extra sugar that is being passed through your body. But your baby is producing more energy for development that it is creating stored fat.  Having a large baby can create issues for the baby and for the mother during child birth. 

http://photopostsblog.com/2009/06/20/beautiful-pregnancy-photos/
In some cases, after birth, the baby can be affected with hyperinsulinemia which is were the baby's blood sugar can drop to a dangerously low level since he/she is not supplied with the usual high amounts of sugar. If not caught early enough in the pregnancy, gestational diabetes can lead to a miscarriage.

There are claims that after gestational diabetes resolves after delivery, that the mothers will develop Type 2 diabetes later. All women should be tested every 1 to 3 years for diabetes after being diagnose with gestational diabetes.

Friday, February 18, 2011

What Causes It??

I don't believe that many people even know the symptoms or cause of Type 1 Diabetes. So this week's blog will hopefully answer some common questions.

When you look up the term Diabetes mellitus (type 1 diabetes) which is referred to as diabetes the most common definition is:

is a group of metabolic diseases in which a person has high blood sugar, either because the body does not produce enough insulin, or because cells do not respond to the insulin that is produced.”

This definition is referring to all forms of diabetes. But to sum it up, diabetes is a type of autoimmune disease or you could say that type 1 diabetes is where the cells of the pancreas produce little to no insulin.

Insulin is the hormone that allows glucose (sugar) to enter the body cells. This is what creates a high blood sugar since the glucose can't enter the body cells, it remains in the bloodstream. If the glucose remains in the bloodstream, it will not be used as energy, but will create the symptom of hunger.

Diagram provided by the internet

Some common symptoms include:

  • Frequent urination
  • Unusual thirst
  • Hunger
  • Dramatic weight loss
  • Weakness
  • Extreme fatigue
  • Blurred vision
  • Irritability
  • And some nausea and vomiting

This form of diabetes is commonly diagnosed before the age of 40 and statistics say that age 14 is when the disease is most commonly appears.

When I was diagnosed, (I was five years old) apparently, I was ill before I was admitted to the hospital. After my honeymoon stage of diabetes (the time period in which your pancreas is still working but only on random attempts to produce insulin before it eventually dies) which lasted 9 months, around the time of my seven year anniversary of my disease did scientist discover that the Coxsakieivirus could have been the bug that sent my world into a spin.

According to the MedicineNet.com definition of Coxsackievirus explains that:

Coxsackievirus: A family of enteroviruses first found in the town Coxsackie south of Albany, New York. The Coxsackieviruses are separable into two groups: A and B. Type A viruses cause herpangina (sores in the throat) and hand, foot and mouth disease. Type B viruses cause epidemic pleurodynia Both types A and B viruses can cause meningitis, myocarditis, and pericarditis, and acute onset juvenile diabetes.”

My mom informed me that she had my blood send to be tested for this virus, however, they could not isolate the virus since I was diagnosed seven years prior.

I hope that this has been helpful to those who do not understand the disease and those who are questioning whether or not they are affected by diabetes. Til next time, stay sweet!

Friday, February 11, 2011

A Mother's Crusade

Diagnosed in 1992, a majority of my life and day is spent at school. The Davidson County school district was wonderful to me and the care of my diabetes. However, not all schools were good to their students who have diabetes.

Friends where having to go to the office to treat hypoglycemia (low blood sugars) or limiting trips to the bathroom or water fountain for hyperglycemia (high blood sugars).

Sharon Pearce, CRNA, MSN
My mother, Sharon Pearce and Me.

My mother, Sharon Pearce, took action immediately after hearing horror stories from fellow diabetics. After her research and contacting everyone in the senate to members of the school board did she come to her conclusion. Students who have diabetes are not always safe in their school.

Her crusade for the rights of diabetics followed.

The Care for School Children with Diabetes Act was first introduced into the North Carolina General Assembly by former N.C. Senator Patrick Ballantine and Representative Gene Rogers back in June of 2002.

After lobbying, writing letters, sending photos, attending committee hearings and visiting legislators eventually paid off.  

Governor Mike Easley signed Senate Bill 911, the Care for School Children with Diabetes Act, into law on September 5, 2002. 

With this bill it ensures that the children of North Carolina with diabetes can safely care for their diabetes at school.






The N.C. Board of Education adopted such guidelines such as:
  • An individualized diabetes care plan

  • School personnel be trained in the care of diabetes and hypoglycemia (other than the school nurse)

  • Children have immediate access to diabetes supplies

  • Children be allowed to monitor their blood sugar anywhere, at anytime during any school activities

  • Children be allowed to eat a snack anywhere, including the classroom to treat hypoglycemia

  • Children be allowed access to the restroom and access to fluids as necessary.

This bill is now being adopted into other states' legislation system to protect the children who suffer from diabetes.    


If your state does not have this plan, adopt it, and take action.  

Friday, February 4, 2011

An Artificial Pancreas?

In the past decade, there has been a vast improvement in diabetes healthcare from new types of insulin to new gadgets to help monitor glucose levels.

Such equipment as an insulin pump alone has improved diabetics' lifestyle.

One of the first insulin pumps
 The One Touch Ping Insulin Pump
My current insulin pump


Did you know that insulin was first discovered back in 1921?Now there is a plan called the Artificial Pancreas Project which was approved by the Juvenile Diabetes Research Foundation (JDRF) back in October of 2005.

The idea behind the Artificial Pancreas Project is creating a 'real time' sensor. This sensor would work as a meter that is attached to the body (no more finger pricks!) that would test glucose levels periodically. With the constant glucose readings, a special algorithm would relay the proper insulin dose to a pump like device.

A diagram of how the Artificial Pancreas works.


Although, it is not a cure, it is a way for diabetics to better manage their disease and reduce the burden of the disease.  This concept will also be used for pregnant women with Type 1 Diabetes.  This will allow the expecting mother to care for her disease as well as her unborn child and reduce the risk of a dangerous pregnancy.  

From the BBC news article, Artificial pancreas could save lives during pregnancy quoted Dr. Helen Murphy, from Cambridge University, "These high blood glucose levels [in pregnant women] increase the risk of congenital malformation, stillbirth, neonatal death, preterm delivery, macrosomia [oversized babies] and neonatal admission.  So to discover an artificial pancreas can help maintain near-normal glucose level in these women is very promising."


According to the research, “the Artificial Pancreas kept glucose levels normal for 60 percent of the time compared with the 40 percent of the continuous pump. “



Thursday, January 27, 2011

Don't Let It Affect YOU!

I have been living with diabetes a majority of my life. I was diagnosed March 28, 1992. I am now 23 years old and I can see how having this disease has affected those around me.

Shortly after being diagnosed, my entire family made a drastic change. My parents, my brother, and my twin sister all changed their diets to accommodate for my dietary needs. My strict lifestyle affected everyone.




Myself, Michelle, my twin, and Brett, my brother


My schedule also changed. I was to wake up at seven in the morning for my morning injection. My twin sister soon became a pro at giving me my morning antidote of my bended Humulin R and N insulin.

At birthday parties, I was given cake with the icing scraped off while my twin was allowed to indulge in all the sweetness of cake. She later informed me that she felt guilty for eating candy in front of me.

My friends were also affected. They choose not to drink sugar-full beverages around me nor do they wish for me to feel isolated because I live with this disease.

TerriLyn Quarterman-Maye's great grandmother, grandmother, and mother are all diabetic. “I am coincidence of things because of it,” she states. “I eat healthy," she adds, ”and refrain from eating sugar.”

Quarterman-Maye's stepfather also has diabetes and has been in a diabetic coma. “I have seen what can happen to a diabetic,” Quarterman-Maye states.

Stacie Clemons, whose best friend is a diabetic, adds that sometimes she is scared for her. “I don't know how I could handle what she lives with everyday,” Clemons explains. “My biggest fear is her having a seizure or worse!”

Watching how technology has benefited me with the increase knowledge of diabetes has given me the opportunity to experience what I call a 'normal lifestyle.' I have been grateful to be on the insulin pump which allows much more freedom for me as well as my family.

I encourage all not to allow diabetes to control your life. I encourage all to believe that there will be a cure and that not all hope is lost. I can only wish that those who know an individual with diabetes to educate themselves and understand that our lifestyle does not have to be yours.